Be Still

"Be still and know that I am God."

The storm continues to rage around us, but God is the calm within this storm and He continues to make a way.

The results for the head ultrasound came back and they were not what we had been praying for. We had prayed for a miracle, that the fluid would miraculous recede and that Graces brain would be pressure and damage free. However, we also pray for God's will to be done, and I need to remember that He is working things out in His way, not my way.

We were told by Grace's doctors late Monday night that the ventricles Iooked quite large and that things continue to regress, and that they don't look good. So, they have decided that they would like her at Sick Kids for monitoring as they do not have the specialized brain surgeons at Sunnybrook. This way when it is determined that the surgery to relieve the pressure is absolutely necessary (even if she hasn't reached the ideal weight yet) they can do it right away. Although she has improved in weight (700grams) she is still not quite big enough. They can also do an MRI at Sick Kids so they can get a better picture of what's going on in Graces head.

So, Grace was transferred to Sick Kids at 10:15am Tuesday morning. We were discharged from Sunnybrook officially and had to pack up her room. This was hard for us as it had become home; we had a space in the kitchen, our own private room with Grace, we had to come to know the community and medical team, and we have a place to stay only 8 minutes away. But we also know that Sick Kids is where Grace needs to be and what is best for her, so of course we go! We are thankful she was moved while she was stable, instead of waiting for her to deteriorate and her having to transferred in an emergency situation.

Grace getting picked up for transfer

On the way to the Ambulance!

Sick Kids is WAAAY different then Sunnybrook. It was a shock to the system when we showed up, and we felt like new the new kids at school, but we know in time it will start to feel like home too! I would say that the only thing that is really hard for me to accept is that Grace is now in a space with 4 other babies in incubators, so no privacy, and that she can only have a list of 5 permanent visitors while she is at Sick Kids. Obviously family and friends can still visit with Sam and I, but only the 5 on the list can see her. This is hard as there are so many people who love her and who haven't gotten to meet her yet. However, there is a Ronald McDonald Family Room right in the hospital that we can hang out in and take breathers when need be! We have also plan on applying to stay at the Ronald MacDonald House, and once we are approved will go on the waiting list. However, in the meantime our drive from the home that we were so graciously gifted is about 25 minutes (which is so much better then it would be from our apartment in Caledon). We will just need to continue to pay for parking downtown while we wait for a space.

While things don't feel good right now, we know that our God doesn't stop till things are good, so we continue to believe that He is still working. A slow miracle is still a miracle and slow healing is still healing. We just have to continue to trust God in the waiting, and be patient, as God is not finished yet!

Please continue to pray for Grace and that her brain would heal, and for Sam and I as we adjust to a new place.